Mikey at Camp: Redux

Well, if anyone was wondering: Did Mikey enjoy camp:

On Saturday, we had the boys over "as usual." The day went fine. At the end of the day, after Grandpa helped him shave and he was prepped for his shower, he had a total meltdown. "Camp." "Camp!"  "CAMP! CAMP! CAMP!"

He wanted, he demanded, to go back to camp. It took us 15 minutes to get him calm. We tried to equate camp with "birthday" and "Christmas" which he understands happens once a year. He did sleep the night; was fine Sunday; and went back to school this morning.

Mikey at Camp: Part VII - The Journey Home

This is it - Mikey and I travel home today. I'm trying to stay calm. Thunderstorms have delayed flights - "our" flight, yesterday, took off 3 hours late. There are continuing delays at DEN. Frontier cancelled flights due to hail damage. Today's forecast is for afternoon possible thunderstorms - mornings are much drier. Assuming we do camp next year, I am planning to schedule the 1 pm flight (if the flights stay the same). We'll miss the "awards" and slideshow, but we'll be more likely to get home. I have reserved a room at an airport hotel "just in case." It's sunny now - the pattern is AFTERNOON showers. Wish I'd found that out sooner. Stay tuned ....

Addendum #1 - We made it more or less on time. Will update blog early in the week with the details. Summary: Mikey did extraordinarily well, considering what all he had to deal with. Week at camp was a big success too!

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SO I drove to camp and parked - got there about 9:30 (a bit early) and started to walk up the hill. And there were Mikey and Spenser! Got a hug and Mikey said, "Can I go home, please?"

I said, "Not yet. We have to get luggage."

I had to repack a bit - the sleeping bag was not in a suitcase - and the laundry was wet as well. (I had sent plastic trash bags, in anticipation; but obviously wasn't clear in my instructions as to what I wanted.) I hooked up with Amy, who had the "stories" to go with the trip home and the *gasp* possible delay. They started some of the closing activity - it was loud, group activities - sing along kinds of things. Mikey wasn't having any - Spenser volunteered to take him for a walk. Long story short: Although I appreciate what they are doing, I don't think I'll stay for the "show" next year. For a number of reasons.

Spenser helped us get to the car, and put the luggage in, and we got Mikey loaded up. I gave him the Going-Home-Steps story. He barely glanced at it; I picked it up periodically and checked things off. I had researched the rental car return location and found a place to get gas. We stopped for gas; then he wanted KFC for lunch again. We did that. And he wanted "airport." It was so early!

I curb-checked the luggage, again; and got instructions on getting to security. Security took a little while, and (lucky me) I got dinged for the "random search of baggage." They wanted to pull me aside, and I said, "This child is autistic and he is coming with me." The guy sized up the situation and said, "How about if I just take your laptop?" He had it back before I had finished getting everything together.

Of course, Mikey wanted the airplane right away. I had to explain - again - "Airplane at 4:30." This was really hard for him. Fortunately DIA has wi-fi, and he occupied himself with YouTube - for about 20 minutes. THEN he wanted airplane again. I got him up and told him we would get ice cream - I got him some ice cream. That took another 10-15 minutes. I took him to the bathroom (family) - He started to scream. I was afraid someone would send security in - but they didn't. Got him calmed. Talked about 4:30 again. Gave him second clonodine.  Left bathroom.

We walked around. DIA has a couple of levels, connected with escalators. We went up; walked around; went down; then went down to the lower level, just past our gate. It was almost empty down there - I got him back on the computer. I also tried some of the toys I'd brought - coloring book & crayons - no; dinosaur book - a little. He didn't want to watch the DVD. BUT - the plastic dinosaur pieces did engage him. He played with them for a while (I got online; and, thank GOD - the weather improved! The expected thundershowers were now expected at 8 pm - long after we should be taking off.)

Mikey got "done" with the dinosaurs, and wanted the computer again. I gave it to him. I bit later, he wanted up again. We went up one level, and he plopped down, right across from the gate. He stayed on the computer for quite some time - I even got a family to watch him for a sec while I checked on the flight - it was going to be about 20 minutes late; when I checked, they said the craft was 5 minutes from landing.

I got Mikey, took him over to the Schlotzky's Deli stand, and ordered a sandwich for him We went back to the gate. We passed the window, and I said, "Mikey - there is our plane!"

He was going to stand; I said, "Mikey, see those people? They are coming off the plane. We can't get on until they get off. Would you like to sit down?" He did!

A short while later, we got on the plane (no upgrade this time). He got on and sat and ate half his sandwich. We had the usual anxious-to-get-going but nothing extraordinary. BUT - about half-way through the flight, he started to get antzy. Finally he asked for the bathroom - just as we got up, a woman with a small girl beat us to the one toilet. We went back - Mikey tried to get in the door and I had to stop him.

In the last row of the plane, there was a young girl (10-12) sitting alone; Mikey asked to sit. I said OK. Then he said, "Seat Belt."

"Ok, Mikey, but you'll have to take it off again in a second."

Then he said, "Grandma to seat," and he groped for the little girl - I had to grab him and hold his hands.

Finally, the woman finished; and Mikey went in. He stayed in a long time. I finally opened the door (Mikey doesn't know how to lock the airline lavatory door) and - OMG he was naked. I said in a heavy whisper, "Mikey, put your clothes on!" He did and we went back to our seats.

He was pretty good the rest of the flight, with the expected antzy-ness near the end.

However - I had asked Grandpa  to be there IN the luggage area, and he forgot. The luggage took a long time to get down. Mikey was getting harder and harder to handle. I finally spent the $5 on a luggage cart and had him push THAT around with me until the luggage came - it and Grandpa arrived at the same time.

"Where did you park?"
"I got a good spot, 2 rows back just across the street."
"Good. You take Mikey and load the car, and I'm going to the bathroom!!!!!!!"

Anyhow, it was smooth sailing from there.

Mikey at Camp: Part VI: Still good!

I slept the whole night - and no calls from camp. Wow. This is great.

I'm going to call up there today and ask them to go over the schedule with Mikey, and remind him that tomorrow is the day to go home. I'm also going to ask if I'm supposed to be there for the activity labeled, "Pack Up."

I am a tad apprehensive about tomorrow, because of the timing. The outbound flights that were available were at 1 pm and 4:20 pm, so I picked 4:20 pm. This will certainly allow us all the time we need to return the rental car, get lunch, etc.; however, it means we'll be flying late in the day. After some long, and not-very-much-fun, stuff. So today, I'll spend a little time putting together a suggested "story" and email it to camp, after I talk to them.

I'm also headed to Walmart today, to pick up some snacks and maybe find something "interesting" to occupy Mikey - maybe a new video or something like that. Also, I have a nose bleed and am going to pick up some Afrin and extra sudafed.

Wish us luck!

Addendum @ 9:13 a.m. - Spoke with Amy - Mikey has been sleeping just fine and is doing well...
Addendum @ 11:46 a.m. - Went to the nearest "full" shopping area (22 miles away) and got for the return trip: snacks, a DVD, some Things I Hope Will Engage Mikey. Will concentrate on packing up today - have to organize it all now for what gets checked and what goes on-board. 

Mikey at Camp: Part V - Two More Nights to Go!

Well, it's Wednesday. Mikey has been at camp since Sunday evening.

There was really loud thunder and lightening yesterday evening - but most of the late afternoon was dry after the earlier rain. I hope Mikey was able to go back outside.

I've written out a 2 page "checklist" of the steps to get home, and am hoping I can get it printed somewhere. If not, I'll write it out. It ends with a picture of "Mama's House" from Google Maps.

I did wake up once - but not from dreaming about a call. Hot flash. Went right back to sleep after.

There is a train and mine tour close by - If it's still quiet by mid-morning, I may go take it ....
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I called camp again this morning. Mikey is doing "Just Fine." I know he's swimming - with other kids - and I think he's ziplining as well. Not sure about the horses. I sure hope he wants to go home at the end of the week, and doesn't ask for camp again next week!

Well, I did go take the train. This is silver mining country. The train starts at 8600 feet and goes over a several-hundred-feet-high bridge, and gets you up to 9000+ feet to the other station. On the way back, I stopped for the mine tour - they actually take you back into the mine several hundred feet. The worst of it was getting back up to the train depot. A slightly steep, not too long hill - by my usual elevation is a couple of hundred feet ...

On the way back, I stopped at the tea room and had tea. Yummy meat pie with the flakiest crust I've ever seen; some deviled eggs; a scone with lemon curd and cream; and a cookie. And the best tea - I did buy some to bring home.

So Grandma got some really nice "me" time today, and I wasn't at all anxious. Tomorrow, the Hotel de Paris, built by a French chef (among other talents), and now a museum, is celebrating Bastille Day between 4-6 p.m. If all continues to go well, that's where I'll be.

And all quiet on the camp front! It's almost 5 p.m. Dark clouds are starting to roll in, but it's been pleasant and sunny, with high fluffy clouds, all day.

I can print the new checklist on the computer here at the hotel, for a quarter a page.

Everyone keep praying and/or crossing body parts - we're doing well here.

Mikey at Camp: Part IV - Doing Well!

I spoke to camp today. Mikey is doing fine. He has had a few melt-downs, but they were controlled in short order. His major one was at the pool yesterday - they got to the pool JUST as the thunder and lightning started, and they had to not let him in. (I told them to give him a note that says, "Rain means get out of pool.") At any rate, there seems to be nothing they can't handle. (I called Mom with the update.)

They have had to remind him to keep his hands to himself - actually, what they told me was, if he starts to touch someone - there are girls at camp too - all they have to do is say, "Mi-key!" and he pulls back his hands and says, "Keep your hands to yourself!"

I Feel Much Better Now.

Mikey at Camp: Part III - 12:41 a.m.

Well, I woke up again - and again thought I heard something buzz. Hm. Wonder if something *is* buzzing near here.

Today's update: No news is good news!  Although I wish camp would email *something.* Mikey is probably having a good time but Mom and I REALLY WANT TO KNOW.

Mikey at Camp: Part II - 12:14 a.m.

Three buzzes ... I jump out of bed and grab the phone. It's 12:14 a.m. There is NOTHING on the phone - no text, no missed call, no VM. I must've dreamed it ... it's happened before, when travelling for work. I'll "dream" the alarm went off and jump up and ... it's the middle of the night ...  I checked the alarm clock, too - nope; not set and not turned on.

Mikey must have made it through the night, perhaps better than I did. I had trouble getting to sleep; trouble falling asleep; and trouble staying asleep. I woke up at 5:43 a.m. today. (Hopefully, for Spenser's sake, Mikey stayed in bed a bit longer.) I had a bit of a headache last night - my guess is another one will return today from lack of sleep. I am going to email the camp director and request an update on Mikey and how he did. And drink lots of water, after my coffee.

As for myself, I am going to explore Historic Georgetown Colorado on foot later today. (I have a little bit of work to do on the computer this morning.)I'm staying at the edge of town, on 11th street, and town goes to (maybe) 1st street. I drove through yesterday, and it's filled with parks, small museums, gorgeous architecture, restaurants of all kind, antique stores and tchotchke shops.(Cell phone in hand, of course.) It's close enough to get back here quickly and the camp is 4 miles up the road. [Don't worry, Hubby, I don't have room to bring much of anything back.]

I had a terrific dinner, modestly priced, at an establishment known as the Euro Grill - for food think, German/Czech/Polish. I had Hungarian Goulash. They have duck on the menu. And red cabbage. Yum.

Mikey at Camp: Part I - Exhausted ...

Usually I write about the boys directly. Today, I am writing about me more than about them.

Today, I took Mikey to an Easter Seals camp for autistic kids. This has been in the planning stages for quite a while. Mom and I have worked on getting together appropriate camp “things” – this is CABIN camping, not wilderness camping – and I have been working on social stories “How to Swim”; “How to Brush Your Teeth”; etc.

A week ago, we told Mikey about camp – actually, although we’d kept mum, he somehow figured it out already (did I tell you he was bright?). I gave him one social story last week, that summarized how the trip would go. I made several more detailed, individual stories to focus on specific things.

Yesterday, we had both boys at our house. It was a slightly off-kilter day, since we were dealing with all the last minute packing. Marc took David home, and I went over ALL the social stories with Mikey. Mikey slept at our house; although he asked to go to bed at the “usual” time (for him), he didn’t go to sleep until after 10:00 p.m.

Mikey was first up this morning – before 6 a.m. by just a little. We had to get up anyhow; Grandpa showered and I gave Mikey his “first” breakfast – Gorilla Crunch Munch with milk (a couple of bowls) and fried eggs. He found .” the home-made biscotti Mom sent and ate one. We packed up the car and drove to the airport.

When we passed Long Beach Airport on the way to LAX, Mikey said, “Airport.” We explained we were going to a different airport and he was OK with that. We are travelling on American Airlines – I have Platinum status from business travel – and, although we were travelling on a regional jet, I managed to snag two first-class upgrades for the outbound flight (am keeping various body parts crossed in hope that luck repeats on the return).

We got a notice with our boarding passes that they are doing construction at T4 and that PriorityAAccess was moved – the airport was its usual crowded, and we got to the right area – very well marked – pretty well. I curb checked the three bags – a small one for me, a bigger one for Mikey, and one for camping gear (sleeping bag, sheets, towels, etc.). Mikey has a large canvas bag, for stuffed animals; I had my Disney purse and my roller on. I had his Gameboy (which he did not use) and a DVD player, which we bought yesterday. We showed him how to use it; Mom made a copy of his favorite Little Bear tape and Grandma brought Lion King which has an activities disc with it.

Security – TSA was extraordinarily nice! One agent pushed our bags though for us and the one at the screening gate kinda held on to him – I sent him first – and got us through quickly. Mikey behaved while I bought us a bottle of water and then made a separate stop for gum (to make sure I had small bills).

We had to take a shuttle to the regional carrier terminal – this was NOT something we had planned, but he followed directions. Other than trying to go through things before agents OK them, he was good. I have to pause and say our timing overall was very good – the waits we had were pretty short.

In the terminal, Mikey started to get antsy about getting on the plane. I managed to calm him, and a very nice young military man in fatigues helped us as well. They called boarding. We got on the plane. He wanted to go right away, but I wrote out a checklist for the flight – wait for people to board, wait for the door to close, etc. I gave him the other two biscotti from Mom. The RJs have 3 rows of first class, 1-by-2 seats. (Originally they had me in a 1 and Mikey in the aisle of a 2; I changed that so we sat together, and put him at the window.) We finally took off. Mikey asked for the DVD player; I told him he had to wait. When it was safe, I gave it to him and he watched Little Bear for a while. The flight attendant brought juice for us. And asked about breakfast. (I had not had breakfast; I had gotten coffee.) This was fine but the service was front-to-back  she did juice and coffee first, then breakfast trays. Mikey kept asking for “breakfast please.” I had to work on him a bit to keep him calm.

Eventually he got his breakfast – a bowl of Special K with 2% milk; “YUM,” he said. A blueberry yoghurt. A banana. A bowl of strawberries and blueberries. And a banana muffin. He at his, along with my youghurt and banana muffin.

He then wanted the plane to land – we were 30-40 minutes out, I’m guessing. I countered with a bathroom break and took him to the back of the plane – there is no loo in First on a Regional Jet. He went, I took him back to his seat, told him to sit and told him Grandma needed to go. He actually sat, by himself, until I came back.

We spent the last half hour talking about landing in Denver. That was pretty dicey. I had prepped him that once we landed, we taxied, then waited for the gate/door to open; he seemed to be OK once we were on the ground. Right before we landed, the man across from me said, “He has very good communication skills.” (!!!) We talked a bit about autism and types. I guess we are lucky – some autistic kids never talk at all. He also commented on how stressful this must be for me. What a nice man!

We went to get the luggage and again, we had to take the airport shuttle to get to baggage claim – something that was not in the story – but he was OK. We had to wait a bit for baggage to come down. I have him a cheese-filled cracker and a granola bar. THEN came the hard part – 4 bags (with my carry on), my purse and the big canvas bag with stuffed animals. I got Mikey to manage 2 of the bags. The bag with the camping gear will be history after this trip – it’s handle broke.

We got to Island 4 and – luck was with us – the rental car bus pulled RIGHT up. The driver was extremely nice – and he put all the bags in. We made one other stop and Mikey tried to get off the bus; I just had to tell him, “Not yet.” We had picked up a full bus load of people and I thought it was going to be awful – I have to say, Enterprise had a fully-manned counter and were signaling people to come and get cars. Our agent, Chris, walked us to our car and loaded the luggage; went over the car and the contract; asked where I was going and provided directions – he was great. I asked him where we could go for lunch and he gave us a terrific suggestion on where to get off – right before hitting the I-70. The lady at the gate as we left double-checked on if we needed anything and asked if customer service had been good – I told her it was OUTSTANDING.

I then asked Mikey if he wanted lunch (silly me); he said, “YES!” so we took Chris’ suggestion and ended up at KFC where Mikey ate 2 pieces of chicken, a bowl of mac’n’cheese, lemonade and 3 cookies. We got in the car, and I reminded him, “One hour to camp.”

The trip for the most part went well. The camp is at 8000 feet – Denver is at a mile – so we had to climb into the mountains. At the first sight of lots of trees, Mikey wanted to go camping “in the forest” immediately. I convinced him we had a while to go to get to camp. However, about 15-20 minutes out he started getting antsy. He had a couple of outbursts – I got them under control – and had him start noticing the signs. We needed Exit 234 and we were at something like 249. I kept pointing them out. At one point he yelled, “Exit 234 please!!”

We finally got to 234. Oh. Mountains outside of Denver are REALLY BIG IN THE SUMMER. The East-bound I70 was CRAWLING. Each of the exits was staffed with peace officers directing traffic – I had to wait and then I turned the wrong way and had to turn around. OK – then I got to where the GPS said the camp was – and it WASN’T – I mistakenly started up a dirt road. I had to back down (one-car-width) and Mikey started screaming, “No camp! No camp!”

I got him somewhat calm, and asked a women – who’s job on the roadside appeared to be answering questions and directing traffic – where the Easter Seals camp was and she said, “Oh, down the road.” So we went but Mikey was still fussy – it was a couple of miles yet.

FINALLY – we saw the sign and I turned in. We drove a short bit, and a person with a clipboard met us. “Camp Horizon?” I queried.

He said, “Yes, and what is the name of your camper?”

“Michael Garcia,” I responded.

The young man said, “Yes, here he is. His counselor’s name is Spenser. Drive down here [to the left] and park and he’ll come meet you and walk you through registration.”

I barely parked when Spenser showed up. He is terrific! He immediately worked on herding Mikey. There was a child crying up at registration, and the child sounded like a baby. It’s one of the things I neglected to tell Easter Seals in advance – that Mikey has a hard time with crying babies. Spenser immediately suggested we wait a bit until, “the situation is under control.”

Spenser had read the 2-page document we put together that talked about Mikey’s issues and how to deal with them; he and I discussed them a bit more. “What do you do to help him calm down?” Spenser asked.

I thought a moment. “Opera,” I said, “Opera and symphony.”

“Great,” he said, “I love symphony. I’ll just pop in some Beethoven!”

We walked a wee bit – to keep Mikey happy – and when the crying stopped, we went to Registration. EVERYONE IS TERRIFIC HERE. The ladies at the desk took our info (and our check) and Spenser managed Mikey. I had to see the nurse, give her his meds, and we had a short discussion about Mikey. She double checked things like diet and made sure he didn’t have seizures, etc.

Spenser took Mikey to his room. I joined them. One of the things I have been telling Mikey is “ … and you will stay with Spenser; Grandma will not be here.” (Mikey has never spent any time overnight other than home and our house.) We unpacked. I gave Spenser the extra snacks for Mikey (if you read the earlier part of this you know why!) At any rate, Mikey was still antsy at this point, and I said, “I’m just going to make up his bed and you guys can go. Mikey, remember, Grandma will not be here tonight!”

“GOOD BYE, GRANDMA!” Mikey said, and started to take off with Spenser.

My parting words, yelled down the hall as they set of on a hike, were, “… and LISTEN to Spenser!”

A woman came into the room to return Mikey’s medical card (they made a copy) and I said, “I was going to make up his bed, but I brought twin-sized sheets.”

“Don’t worry about it,” she said, “We have extra sheets. We’ll take care of it.”

“We’ll take care of it.” In all of Bobbie’s dealings with Regional Center and school, no one has EVER said those words, I’ll wager. And if they did, I don’t think she would have the confidence in the statement that I had in this one. On the way out, one of the staff said, “Now you go an explore Colorado a bit. Don’t sit around worrying.”

I gave her a big hug – or maybe I took a big hug from her for me. I almost cried …

I am exhausted and drained in a way I have never been before. I drove the 4 miles to my hotel – and my voice was so monotonic at the desk. I came to my room and collapsed on the bed, but then I couldn’t rest. So I unpacked. And went and asked about a grocery store. And took a drive through Historic Georgetown. And got groceries. And came back here.

I am starting to feel less exhausted, but I probably will be on alert until late tonight. IF “we” get through the night, I might actually relax a little... 

Mikey the Mad Scientist

So the boys were over, as usual. And there was a brief time while Grandpa, David and I were all upstairs. Grandpa went downstairs and discovered the Mad Scientist at work. He called, "Grandma, come down here now!"

So I put on my shoes (you never know) and went down. There was Mikey, trying to turn on my KitchenAid mixer. In the bowl, he had sugar and several spices. Yup, corrupted by (I think) Playhouse Disney online, he was trying to make - A GIRL!

For those of you who don't remember: Sugar and Spice and Everything Nice...

Mikey also said, "Boys like mud," which Grandma immediately corrected.

"Not all boys!" [and certainly NOT Grandpa, which any of you who know him already know], "AND some girls do!" [which you also know if you've ever seen my in my garden :-]